Woman Diagnosed With Rare Heart Disease at 27 After Years of Dismissed Symptoms

Megan Kaverman spent years being dismissed by doctors before finally receiving a rare heart disease diagnosis at 27.

Megan Kaverman was 27 years old when she finally received a diagnosis for a rare heart disease — but only after years of doctors dismissing her symptoms. Her complaints of weight gain, fatigue, and high blood pressure went unaddressed for an extended period before she received answers. The diagnostic journey was prolonged enough that Kaverman described it as going to 'hell and back.' The specific rare heart condition she was diagnosed with is not named in the available reporting, but the struggle to be taken seriously by medical professionals was a central part of her experience. The story took a new turn when Kaverman recognized the same symptoms she had experienced beginning to appear in her sister. The familial connection raises questions about a possible hereditary component to the condition. Rare diseases frequently go undiagnosed for years — the average rare disease patient sees multiple specialists over many years before receiving a correct diagnosis, according to patient advocacy research.

Why it matters

Rare heart diseases are frequently missed or misattributed, particularly in younger patients, and the pattern of symptom dismissal Kaverman describes is common among rare disease patients. The familial recurrence suggests a potential genetic link that could affect other family members.

What's next

It is not reported what stage of evaluation or diagnosis Kaverman's sister is currently undergoing.

Key facts

• Megan Kaverman was diagnosed with a rare heart disease at age 27
• Her symptoms included weight gain, fatigue, and high blood pressure
• Doctors dismissed her symptoms for years before she received a diagnosis
• Kaverman described the path to diagnosis as going to 'hell and back'
• After her diagnosis, Kaverman recognized the same symptoms appearing in her sister

Bias & framing notes

All three sources originate from the same CBS News report — the Google result and AOL story are simply aggregations of the CBS piece, providing no independent corroboration. The specific rare heart condition is not named in any of the available source text, limiting verification. The framing across all outlets is identical and centers on the emotional journey rather than medical specifics.

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